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Friday, March 2, 2018


A Dream is a WISH Your Heart Makes 


         It’s often crossed my mind as to what I would have been or where I would be right now if I didn’t have MAGIS Syndrome.  Before my disease fully manifested itself, I saw glimpse of what might have been.
         I might have been an athlete.
         This might surprise you, but as a little girl I was quick and strong.  No one could catch me during a competitive game of “Duck, Duck…GOOSE!”
         I might have been an obstetrician or a neonatologist. 
         Once again, this might surprise you, but I always had a fascination with life and how a tiny little human formed from conception to birth.
         It’s sometimes bittersweet to think about what fruits my other interests could have produced.  But today, I want to look at the gifts I received because of my Immune Deficiency, not what I lack because of it. This gift provided a “magical,” season in my life.  Through a caring doctor, amazing organizations, and a little bit of pixie dust a WISH that my heart made came true.
         When my disease fully came to a head there were so many, “unknowns.” My rheumatologist could see the toll my illness was taking on my parents and I. 
         He approached my parents asking them if he could nominate me for a, “Special Wish,” through A Special Wish Foundation.  The Foundation would allow me to submit my top three wishes and then they would pick one of them and fulfill it to the “nth,” degree.
         Now what child doesn’t dream of that kind of star treatment? But wouldn’t ya know, my parents told my doctor no?  They said to give it to another child who needs it more.  
         However, I really think God wanted me to have that WISH, because my doctor came to my parents a second time asking if he could nominate me and they said yes! My rheumatologist wrote a sweet nomination letter and the Foundation asked me to pick my top three wishes. 
         And the wish they picked to grant?
         An all-expense paid vacation to Walt Disney World!  My family and I would stay at Give Kids the World Villas, lodging and transportation exclusively for children with life threatening illnesses and their families.
         I was giddy with excitement.  I couldn’t believe I would get to meet Mickey, eat breakfast with Pooh, and feel like a princess in Cinderella’s castle. 
         When my family and I got off the plane I couldn’t believe my eyes.  There was a volunteer from Give Kids the World holding a sign with, “Welcome Whitney Ward,” on it!  From the very start I felt incredibly special. 
         The volunteer took us to our very own villa, and I was given a special badge to wear so people would know I was receiving a “Special Wish.”
 We visited Epcot, MGM Studios, Magic Kingdom, Universal Studios, and everywhere I went I was treated like a princess.  
         Two precious moments stand out to me during that vacation.  Since I was wearing the badge, I was able to be the first in line for everything.  But even in these unique circumstances my parents refused for me to be a child that expected special treatment just because I had a disease, so we stood in the back of the line, waiting our turn like everyone else. At Universal Studios we were waiting in line to meet Yogi Bear, when all of the sudden Yogi saw us and he noticed my badge.  He began tapping his guide’s shoulder and pointing to me.   His guide came up to us and not only brought us to the front of the line, but under the ropes, directly to Yogi Bear to meet him.
The second memory I remember was at one of Disney’s character parades.  If you’ve never been to a Disney parade, then you’re missing out on one of the most magical and awe-filled moments of your life, so we made sure we were there early to get a front row seat. The floats and larger than life characters made us feel like we stepped into the movie, and this particular movie we stepped into was “Toy Story.”              
What made the parade so special is many of the characters walked in the parade.  Several feet away, we caught a glimpse of Bo Peep walking the street and waving at the crowd.  I have no clue how she noticed me with the thousands of people in attendance, but somehow she immediately saw my badge.   
All of the sudden she left her spot in the parade, walked over to my family and I.  She knelt in front of me, took my hand, and placed a sweet kiss on the back of it.  I was astonished Bo Peep would go out of her way to make me feel so treasured.
        Basically, that’s how my family and I felt all week— awe, treasured, and grateful for the priceless gift we were given.  To this day, the outpouring of generosity, kindness, and hospitality my family and I received from my doctor, A Special Wish Foundation, Give Kids the World, Disney World, and University Studios touches my heart deeply. I’ll never forget as a scared, critically- ill little seven-year-old, a WISH that my heart made came true.  

          


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